The disease commonly known as Sickle-Cell Anemia (SCA) affects many around the world. It is possible that the disease may start early at the age of five to six months. Some of the drastic side effects of this disease that become apparent include acute pain, anemia, chronic infections, and sometimes stroke. The sickle-cell trait is identified to be extensive, reaching its highest predominance in parts of Africa and Saudi Arabia where the prevention management of sickle cell disease has been carried out aggressively. World Sickle Cell Awareness Day is conducted on 19th June of every year.
There are many programs around the world to control this disease. Prevention is done through sickle-cell screening and genetic counseling for contaminated regions. Researchers say that the disease can be identified even before birth.
Surveillance and research are important components of the program where the information generated should be disseminated and used as evidence in policy-making as well as in day-to-day decision-making in the management of the programs. Partnerships should be fostered between health professionals, parents, patients, relevant community interest groups, and the media. These partnerships will facilitate civic learning and identification of genetic risks in the community by making it easier to record family disease history, raise more awareness, and actively participate in prevention care programs.
The following are some of the general ways to raise awareness for sickle cell disease:
- Create kiosks in order to share knowledge and help people utilize the opportunity to gain information for those in need.
- Spread the word on social media in several ways such as spreading the word through messages-“John the fight against sickle cell disease.” Those who see it in their feed may feel compelled to learn more about the cause.
- Make and post a documentary-style video on social media about the symptoms and treatments of disease.
- Start a petition to build billboards at important junctions to spread the word about the sickle cell eradication programs.
- Start campaigning and talking to friends and family about Sickle Cell Awareness Day. This would be a perfect opportunity for them to learn about the disease.
- Make pamphlets or flyers about the disease. A few different questions to answer: “How is it prevented?” and “What are some of the symptoms?” These can be given out at shopping malls, supermarkets, hospitals, and so on.
- Wear certain accessory items such as T-shirts and hats, and buy other types of merchandise such as pens, mugs, and pins. One really creative and effective way to spread awareness for the disease is to wear silicone wristbands. Any message can be printed on any given wristband, meaning that those who notice it will also see the message. These wristbands are also popular fashion accessories that can be worn by practically anyone. They are popular at any public event. They are especially useful gifts to give people at a fundraising campaign event. Wristbands bought online are fully customizable, but no matter where they come from, they often come in a variety of colors, sizes, and designs. When customizing silicone wristbands, it is possible to select special designs such as embossed, debossed, dual layer, multi colored, and swirled that aren’t seen as often in stores.